The rare disease OS
You are not alone.
Rareix is the home for rare disease patients, caregivers, and communities. Find your people, find the right trial, find a specialist who gets it, free, forever.
300M
people live with a rare disease
7,000+
distinct rare diseases
5-7 yrs
average time to diagnosis
Start here
Everything a rare disease patient needs, in one place.
Communities
Built for rare, one community at a time.
We go deep before we go wide. Each community gets a focused, modern home, starting with two where the need is sharpest.
Featured community
Ehlers-Danlos Syndrome
The Ehlers-Danlos community is large, digitally native, and deeply underserved. Patients spend years being told their symptoms are anxiety, growing pains, or in their head, long before anyone connects the dots.
~1 in 500
live with hEDS / HSD
10-22 yrs
average time to diagnosis
10+
wrong diagnoses, on average
Your community, next.
We expand by demand. Tell us which condition needs a home and help us bring it here.
The platform
More than a website, a rare disease operating system.
Disease communities
A modern, focused home for each condition, not a forgotten subreddit or a decade-old forum.
Clinical trial matching
Every study on ClinicalTrials.gov, matched to your condition and explained in plain English.
Specialist directory
Find rare-disease-aware doctors and centres, so you stop starting from scratch.
In build with the community
Our belief
Rare as identity, not illness.
300 million people, each condition rare, together the size of a nation, and no modern home built for them. We're building it, patient-first, and we're never selling that trust.
Founding members
Be one of the first 500.
Founding members get early access, a founding badge, and a genuine say in what we build next. We build Rareix with the community, not at it.
We will never sell your data. Read our plain-English data charter.